Sunday, April 26, 2015

A Rainy Friday Night in April...

Hello there!

How’s everybody doing out there? Here in Waukesha, Wis., Spring has not thoroughly sprung. It has teased us a bit with occasional 60-70-ish degree days, but overall it’s still pretty chilly. The upside to the April chill is that we still have a whole lot of May’s warm goodness to look forward to.
I wanted to take a moment to share something with you all that recently turned out to be inspiring as well as a lot of fun for me. First I want to say that I swear I meet the nicest people in the world. Back in August of 2013, Todd and I attended the Helping Hands Midwest picnic in Ohio. Here’s the link to the blog post I wrote about that:  http://katiekolbergmemmel.blogspot.com/2013/08/helping-hands-midwest-picnic.html   Along with many other folks, we met a young family from northern Illinois. They did not attend the gathering in 2014, but I could see via her Facebook posts that she’d gone into business by opening a coffee shop.
A couple of months ago, out of the clear blue, she messaged me and asked if I’d be interested to come down to her shop and do an author event. She hoped to coordinate so that Tony could be her musical guest. Her hope was to make it out to be a Lucky Fin family event. I’ll cut to the chase and say that her request worked out perfectly with Tony and Lesleigh’s Spring tour. The event took place this past Friday, April 24, and it was so special. Todd also wanted to participate, so he took off a few hours early from work, and drove me down to Long Grove, Illinois.
Lesleigh, Tony, Me, and Todd at Beans & Leaves in Long Grove, IL
The coffee shop, Beans and Leaves Coffee & Tea, https://www.facebook.com/pages/Beans-Leaves-Coffee-Tea-Cafe/108511809972?fref=ts is in a very eclectic and artist-y area of their town. I told our hostess, Ethel Robey-Berger, that it reminded me of Wisconsin’s own “Door County” tourist area. Ethel had hoped that our event could be held outside on the shop’s patio area; but (and you know what I’m going to say next) it was approximately 45 degrees and raining. ;)  Soooo… inside we went.
Tony and Lesleigh were already there and setting up when we arrived. Since we were to share the stage as an Author/Singer/Songwriter evening, Tony and I had decided that I’d start off the evening, speaking about our early days. I spoke to the intimate “Standing Room Only” crowd about how a young couple (Todd and me) went from meeting, dating, and living as young marrieds; to the parents (me, now a stay-at-home mother) of a child born with a limb difference. I shared Todd’s and my differing life approaches, and how much I worried. I had so many questions – would Tony ever play sports? Music? Find love? I spoke about some of my early feelings of stranger’s stares and questions, and how I eventually chose to educate others through my responses. “He was born this way,” I’d say. I believe that choice has made all the difference in all of our lives.




 
I then left the stage area, and Tony and Lesleigh put on an inspirational concert. He told stories of how certain songs came to be. He invited Lesleigh to sing with him, and they shared their harmonies with the crowd. Many kids were present, and so he interspersed childrens’ songs into the show. As always, the whole crowd sang along to “The Lucky Fin” Song, which often leaves ‘some people’ ;) teary. Here’s the link for the song/video, just in case you’ve never seen it.
 
 Right before the end of the concert, I went back on stage and wrapped things up. “Remember all of my early questions? How I worried if he’d play music, or if he’d find love? Well… how’s he doing?” I assumed from the crowd’s applause that they feel he CAN play music well, and that the kids’ marriage and love are apparent. To end the show, Tony played “America to Go,” which is one of my all-time Tony Memmel fav’s… (yes, I admit to having many, but still…)
 
After the concert, people came up, introduced themselves, and chatted. The kids sold CD’s and I sold/signed some books. It was great to see some familiar faces from the Illinois chapter of the Lucky Fin, and it was also great to make some new friends. But for me, I think that the highlight of my night was meeting a young woman who is anticipating the birth of her unborn Lucky Fin baby. She and her husband came out to hear Tony play and to meet him in person. I think (I really do think) that seeing him and Lesleigh perform, meeting Ethel, me and several other families of kids with limb differences, was a big relief/support to them already. They now know they’re not alone, and that many people have been where they are – and most of all, that life can be so good, so positive, for our kids.
After we left the coffee shop, Ethel and her family took the four of us to a local Italian restaurant. We shared some good food, along with lovely conversation about everything from how they met, to their kids’ school experiences, to music, to parents, to retirement… a little something for each of us. It’s always such fun to get to know new friends, isn’t it?
Anyway, I want to take this opportunity to thank Ethel, her family, her employees, the Lucky Fin families who came out, and the Long Grove community for welcoming us. What a great way to spend a rainy Friday night in April…! 

Katie Kolberg Memmel is the author of “Five Fingers, Ten Toes – A Mother’s Story of Raising a Child Born with a Limb Difference.” It is available through Amazon:   http://www.amazon.com/s/ref=nb_sb_ss_c_0_13?url=search-alias%3Dstripbooks&field-keywords=katie+kolberg+memmel&sprefix=katie+kolberg%2Caps%2C182

For more information about Katie, her book, her blog, and her writing go to www.katiekolbergmemmel.com 

 

   

Wednesday, April 8, 2015

Remembering Hands 2 Love Camp

It is so incredibly hard to believe that a whole year has passed since Todd and I were invited to attend Hands 2 Love Camp in Gainesville, Florida. Last year at this time, we were busy planning, plotting, and packing.

We met so many lovely people - both adults and children. Not to mention that being from Wisconsin, we were able to absorb some of that gorgeous Florida sunshine for a few days.

When we got home, I wrote a blog post all about it, and decided to share portions of it again. If you are going to the event this weekend, have a wonderful time. Thanks to every single person - both staff and families - for your hospitality to our family. It is not forgotten... :)

Written in April of 2014: 

Todd and I flew into Gainesville, Florida - a part of Florida that we'd never visited before. The camp was set on a lake’s shore with cabins scattered around the outskirts. It was a very pretty sight. Todd, Tony and I stayed at a motel. The number of camp families had grown so large that some of the attendees stayed at the motel too.
The weather turned out gorgeous – if you enjoy blue skies, temps in the low 80’s, and a light wind blowing thru the trees. On Monday, as I sat at my dining room table looking out at the snow swirling around in my back yard (again!), it was hard to believe we just experienced all of that beautiful weather the day before. Though I love my Wis. home, those warm breezes surely did call out my name…
Everyone at the camp welcomed us with warm smiles and hugs. It was such fun to finally associate faces and names to certain Facebook friends of mine. Every so often someone came up to introduce herself to me, and we’d smile and laugh as old friends – which of course we are! Oh, social media - how you’ve changed the world! Ruthie showed us around and explained what we’d be doing on Saturday. How strange it was for me to be back in a camp setting after so many years. It brought back wonderful memories of my own experiences attending 4-H and church camps. Isn’t it amazing how things ‘stay the same’ even as they change? Think about it…  
On Saturday morning I felt a little nervous. Todd and I planned to host four parent sessions throughout the day, while their kids attended a music clinic with Tony and a drumming specialist. The subject of our sessions was “Networking.” I remember so clearly being a young mom, trying to find other families to connect with who felt the same way I did. For many parents those feelings still ring true. Let me say this… the world is not always kind, as we all know. But when you are raising a child with a ‘difference,’ when you’re often on guard, watching for people’s reactions, listening for hurtful comments, it can be – well – it can be exhausting. This was a weekend where the parents felt peaceful, ‘at home,’ their children could simply ‘be.’ Since everyone attended for a united purpose, there was never a time for them to feel signaled out or alone. Everyone there was in it together. I hoped and prayed that Todd’s and my message would be heard and well-received because working with these young moms and dads is one of the joys of my life - truly.
Our outdoor location could not have been more fantastic. We sat high up on a hill, with mossy trees providing our shade. We looked to our left – lake. We looked to our right – lake. From the nearby rec center we heard the sounds of the distant drum clinic, and our son’s voice leading a chorus of children in “The Lucky Fin Song.” What a rough way to spend a work day, you know?  A tough job, but somebody had to do it… ;)  The beautiful setting seemed to remove any apprehension.
As I prepared at home the week before, I came across this statement about networking:
“Be amongst others who share your dream.”
I believe that all parents dream for their children – I know that I did and still do! We dream about their futures, what choices they’ll make, what line of work they’ll choose, who they’ll meet (and possibly marry someday)… These parents are coming from many miles to network with other parents who all share a similar bond. Every one of them shares their life with a person (mostly a child) with a limb difference. So as they network about their beautiful kids, as they share what works and what doesn’t, as they laugh or tear up, they know they’re “amongst others who share their dream.” The feedback I received was that, at this time in their lives, nothing is better than that. The date for camp is marked on their calendars already for next year. The countdown has begun.
Camp ended on Sunday morning. Tony spoke to all of the kids and adults, showed the captive audience how he “tapes up” with Gorilla Tape every time he plays. He talked about persistence in doing what you love to do. He sang a couple of his songs. And finally, at the end, he led the whole children’s group in “The Lucky Fin Song,” and all of the kids did hand motions. If there was a dry eye in the place, I didn’t see it. An emotional slide show ended the morning, showing all of the special things (archery, art, music, ropes course, etc.) the kids had done and accomplished throughout the weekend.  Click here to see the Lucky Fin Song video from August, 2013:  https://www.youtube.com/watch?v=-3Q8pRO_4MI&list=PLAB4186F7073B844F
I want to personally thank all of those at Hands 2 Love who take their time, energy, resources, and love to host this camp each year. They’ve grown ten-fold since their beginning 14 years ago. Who even knows what the future may hold? All I know is that when I was a young mother, it was awfully difficult to find someone who understood what I was feeling. There is growing support out there for all of these parents who want to network, and “be amongst others who share their dream.”
…and there’s a message in there for us all...
Katie Kolberg Memmel is the author of “Five Fingers, Ten Toes – A Mother’s Story of Raising a Child Born with a Limb Difference.” The book is available thru Amazon. For more information, go to www.katiekolbergmemmel.com